Breaking News
March 19, 2018 - Telediabetes program improves blood sugar control for veterans
March 19, 2018 - Morning Break: House Nixes ‘Right-to-Try’ Bill; Purdue’s PR Makeover; Air in the Brain
March 19, 2018 - Heart researchers develop a new, promising imaging technique for cardiac arrhythmias
March 19, 2018 - Mice study shows how BPA exposure during pregnancy can lead to altered brain development
March 19, 2018 - Breastfeeding mothers who overeat may increase risk of health problems in offspring
March 19, 2018 - New mobile application can detect atrial fibrillation that causes strokes
March 19, 2018 - Study finds low rates of preconception counseling among women of childbearing age with diabetes
March 19, 2018 - ObsEva SA Reports Positive Topline Results from IMPLANT2 Phase 3 Clinical Trial of Nolasiban in IVF
March 19, 2018 - D.C. Week: States Plead for Federal $$ in Opioid Fight
March 19, 2018 - Polycystic ovary syndrome – Genetics Home Reference
March 19, 2018 - Reducing co-payments improves patient, physician adherence to guideline-recommended treatment post-MI
March 19, 2018 - Normalizing estrogen levels can benefit female athletes with irregular menstrual periods
March 19, 2018 - Fitness trackers and virtual coaches motivate patients to exercise post cardiac rehab
March 19, 2018 - Atrial fibrillation patients could reduce risk of dementia by taking stroke prevention drugs
March 19, 2018 - Low sperm count more prevalent with other health problems finds study
March 19, 2018 - Male birth control pill taken once a day shows success
March 19, 2018 - AcelRx Announces Receipt of Type A FDA Meeting Minutes and Plans to Resubmit the DSUVIA New Drug Application in Q2 2018
March 19, 2018 - Eye Docs Adopt EHRs Despite Reservations
March 19, 2018 - CRISPR enhances cancer immunotherapy
March 19, 2018 - Study finds first evidence of delayed aging among Americans
March 19, 2018 - Aussies unaware of sun protection rules to prevent skin cancer
March 19, 2018 - Essential oils linked to abnormal breast development in boys
March 19, 2018 - ‘Tummy Tuck’ Relieved Postpartum Back Pain/Incontinence
March 19, 2018 - New biomarkers for neuroblastoma, a type of cancer in children
March 19, 2018 - Hookah Smoking Carries a Poisoning Risk
March 19, 2018 - Do Mood and Anxiety Affect MS Disability?
March 19, 2018 - Mean depth of ultrasonographic penetration greater in autism
March 19, 2018 - Platypus milk may help combat antibiotic resistance
March 19, 2018 - U.S. IDE study of THERMOCOOL SMARTTOUCH SF Catheter completes patient enrollment
March 18, 2018 - E-cigarette use exposes adolescents to potentially cancer-causing chemicals
March 18, 2018 - GOP Senator: Solve Opioid Crisis Through Community, Not Policy
March 18, 2018 - Why is ADHD more common in boys than girls?
March 18, 2018 - Measles alert after two passengers with the disease fly into US
March 18, 2018 - FDA looks to remove nicotine from cigarettes
March 18, 2018 - FDA moves to cut nicotine in cigarettes, helping smokers kick habit
March 18, 2018 - Athenex Announces Phase II Clinical Study Results for KX2-391 Ointment for the Treatment of Actinic Keratosis
March 18, 2018 - Surgery Tied to Better Outcomes in Kids with T2D
March 18, 2018 - Scientists use nanotechnology to detect molecular biomarker for osteoarthritis
March 18, 2018 - Research establishes use of chimeric cells as potential therapy for Duchenne muscular dystrophy
March 18, 2018 - Researcher working to develop improved endoscopic probe for colonoscopies
March 18, 2018 - Researchers develop way to sequence entire fetal genome by modifying prenatal testing method
March 18, 2018 - FDA Approves PDUFA Fee Waiver for Gimoti New Drug Application
March 18, 2018 - P2Y12 Tx Subsidy Yields Positive Response from Docs, Patients
March 18, 2018 - Are Proteins in Formula Linked to Type 1 Diabetes?
March 18, 2018 - Exercise does not seem to increase bone marrow edema in healthy people
March 18, 2018 - Researchers delineate architecture of nuclear pore complex in yeast cells
March 18, 2018 - ‘It’s Just Ghetto-izing People’: What We Heard This Week
March 18, 2018 - Alzheimer’s disease: Neuronal loss very limited
March 18, 2018 - Study reveals impact of intense, changing work schedules experienced by medical interns
March 18, 2018 - Jobs That Keep the Mind Sharp … Even Into Retirement
March 18, 2018 - Facial Scarring Improved with Botulinum Toxin
March 18, 2018 - Data detectives shift suspicions in Alzheimer’s to inside villain
March 18, 2018 - Shorter Preventive TB Tx Effective for HIV+ Patients
March 18, 2018 - New technique for identifying alcoholism puts treatment options at patients’ and providers’ fingertips
March 18, 2018 - Researchers uncover four microRNAs as potential biomarkers for atrial fibrillation
March 18, 2018 - IRX Therapeutics Announces Initiation of Phase 2 Clinical Trial of IRX-2 in Squamous Cervical or Vulvar Intraepithelial Neoplasia 3
March 18, 2018 - OncoBreak: Learning from Silence; ‘Rigged’ Drug System; NCCN Guidelines Questioned
March 18, 2018 - The coffee cannabis connection
March 18, 2018 - Novel centrifugal-flow pump for heart failure patients provides improved long-term outcomes
March 18, 2018 - U.S. FDA Accepts New Drug Application for Prucalopride (SHP555) for Chronic Idiopathic Constipation
March 18, 2018 - Cath Lab Recap: iFR vs FFR $$; Ridaforolimus-Eluting Stent
March 18, 2018 - Tree care workers need better training to handle dangers on the job, study finds
March 18, 2018 - Dementia patients do not undergo diagnostic evaluation at onset of disease, study finds
March 18, 2018 - Transplanting enhanced interneurons restores brain rhythms in mouse model of Alzheimer’s
March 18, 2018 - Gene Therapy Flops for Critical Limb Ischemia
March 17, 2018 - Study spotlights risks in anesthesiologist handoffs
March 17, 2018 - Verb fluency test may be useful tool for differential diagnosis of cognitive failure
March 17, 2018 - Health Tip: Suggestions to Improve Your Cholesterol
March 17, 2018 - Fructans Suspect in Non-Celiac Gluten Sensitivity
March 17, 2018 - Aspirin therapy appears safe before thyroid surgery
March 17, 2018 - Minimally invasive surgical device may one day provide lasting heart repair
March 17, 2018 - UIH and RaySearch enter into new partnership
March 17, 2018 - Is BMI Too Inexact? | Medpage Today
March 17, 2018 - Sleep apnea study finds male-female differences in cerebral cortex thickness, symptoms
March 17, 2018 - Leicester research could help identify people with asthma of different severities
March 17, 2018 - Biosense Webster enrolls and treats first AF patient in clinical study of new RF balloon catheter
March 17, 2018 - Participants in rogue herpes vaccine research take legal action
March 17, 2018 - Imara Doses First Patient in Phase 2a Clinical Trial of IMR-687 for Sickle Cell Disease
March 17, 2018 - AAP: Prevent Medication Errors by Improving Processes
March 17, 2018 - Severe sleep apnea during REM sleep tied to acute CV events
Family impact of congenital Zika syndrome likely to last a lifetime

Family impact of congenital Zika syndrome likely to last a lifetime

image_pdfDownload PDFimage_print
Credit: RTI International

The impact of congenital Zika syndrome on families will be substantial and will last a lifetime, given its severity and uncertainty about long-term outcomes for infants.

What do we know and what can we expect regarding the cognitive, behavioral, and functional development of children with congenital Zika syndrome? How can families best be supported? Why might some babies develop better than others?

A new supplement, published today in Pediatrics, co-edited by researchers at RTI International and Brazil’s Altino Ventura Foundation, helps answer these questions and more by bringing together new evidence about prevention, lessons learned, and suggestions for a path forward concerning the Zika virus.

“Families who have a child with congenital Zika syndrome face an immediate set of demands for specialized caregiving and other factors, such as societal stigma, limited professional knowledge about congenital Zika syndrome, and uncertain future outcomes for their child,” said the supplement’s co-editor Don Bailey, Ph.D., Distinguished Fellow and director of RTI’s Center for Newborn Screening, Ethics, and Disability Studies. “Since Zika is a relatively new public health concern, there is a lack of specialized knowledge on the life expectancy of these infants and the long-term health problems they will experience.”

Congenital Zika syndrome refers to the pattern of birth defects among fetuses and infants of mothers infected with Zika virus during pregnancy. The effects of Zika virus can be severe and include microcephaly where the skull has partially collapsed, decreased brain tissue, joints with limited range of motion, nervous system damage, and other health issues. Microcephaly has been linked with developmental delay, seizures, intellectual disability, feeding problems, and hearing and vision loss.

Zika was declared a public health emergency in 2016 by the World Health Organization. The Centers for Disease Control and Prevention reported that about one in 10 pregnant women with a confirmed Zika infection during pregnancy had a baby with Zika-related complications in 2016.

“It’s safe to say that most children with congenital Zika syndrome will have major impairments that will not be easily treated by surgery, medication or therapy services,” Bailey said. “This supplement synthesizes available information for pediatricians to inform their clinical practice, and will help guide the research agenda and shape public policy for addressing the impact of Zika going forward.”

The supplement includes six articles, three of which are authored by RTI researchers. The research explores what is known and unknown about the effects of the virus, including developmental profiles of infants with congenital Zika syndrome and suggested public health approaches to address the needs of these children.

Researchers suggest four practice areas to support families who have a child with congenital Zika syndrome:

  • Provide accurate and understandable information about congenital Zika syndrome
  • Use active surveillance to identify emerging needs
  • Enable access to formal support services and informal support systems
  • Provide both general and targeted interventions as needed to support child health, development and positive family adaption

RTI and the Altino Ventura Foundation are currently examining the health and development outcomes of infants most severely affected by the Zika virus in Recife, Brazil. Funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, researchers are following 200 infants with congenital Zika syndrome and their families to understand the ongoing health impact, why some babies affected by the virus develop more normally than others, and if more positive prognoses are linked with family or environmental characteristics.

RTI researchers have been at the forefront of Zika virus research to help communities worldwide understand and stop the spread of infection. To learn more, visit RTI’s Zika research webpage.

Explore further:
CDC updates Zika guidance for infant care

More information:
Donald B. Bailey et al. The Likely Impact of Congenital Zika Syndrome on Families: Considerations for Family Supports and Services, Pediatrics (2018). DOI: 10.1542/peds.2017-2038G

Journal reference:

Provided by:
RTI International

Tagged with:

About author

Related Articles