Breaking News
January 19, 2019 - Formlabs 3D prints anatomical models
January 19, 2019 - Heart-Healthy Living Also Wards Off Type 2 Diabetes
January 19, 2019 - Teaching Kids to Be Smart About Social Media (for Parents)
January 19, 2019 - Metabolite produced by gut microbiota from pomegranates reduces inflammatory bowel disease
January 19, 2019 - Researchers examine how spray from showers and toilets expose us to disease causing bacteria
January 19, 2019 - Behavioral experiments confirm that additional neurons improve brain function
January 19, 2019 - New study compares performance of real-time infectious disease forecasting models
January 19, 2019 - Obesity can be risk factor for developing renal cell carcinoma, confirms study
January 19, 2019 - New regulation designs on cigarette packs direct smokers’ attention to health warnings
January 19, 2019 - QIAGEN receives first companion diagnostic approval in Japan
January 19, 2019 - Study explores role of Dunning-Kruger effect in anti-vaccine attitudes
January 19, 2019 - Newly identified subset of immune cells may be key to fighting chronic inflammation
January 19, 2019 - New immune response regulators discovered
January 18, 2019 - Poor blood oxygenation during sleep predicts chance of heart-related death
January 18, 2019 - First international consensus on the diagnosis and management of fibromuscular dysplasia
January 18, 2019 - Rapid resistance gene sequencing technology can hasten identification of antibiotic-resistant bacteria
January 18, 2019 - Researchers develop artificial enzymatic pathway for synthesizing isoprenoids in E. coli
January 18, 2019 - Scientists advise caution in immunotherapy research
January 18, 2019 - How children across the world develop language
January 18, 2019 - Columbia Medical Student Receives McDonogh Scholarship
January 18, 2019 - Secretive ‘Rebate Trap’ Keeps Generic Drugs For Diabetes And Other Ills Out Of Reach
January 18, 2019 - Plant based diet could be the best option for the planet says commission
January 18, 2019 - New conservation practice could reduce nitrogen from agricultural drainage, study shows
January 18, 2019 - UIC researchers receive $1.7 million NCI grant to study Southeast Asian fruit
January 18, 2019 - New study determines the fate of DNA derived from genetically modified food
January 18, 2019 - Scientists develop new gene therapy that prevents axon destruction in mice
January 18, 2019 - Study finds critically low HPV vaccination rates among younger adolescents in the U.S.
January 18, 2019 - Brain cells involved in memory play key role in reducing future eating behavior
January 18, 2019 - Risk for Conversion of MS Varies With Different Therapies
January 18, 2019 - Investigational cream may help patients with inflammatory skin disease
January 18, 2019 - Medical school news office receives six writing awards | News Center
January 18, 2019 - County By County, Researchers Link Opioid Deaths To Drugmakers’ Marketing
January 18, 2019 - Research reveals risk for developing more than one mental health disorder
January 18, 2019 - Scientists discover a dramatic pattern of bone growth in female mice
January 18, 2019 - Study finds link between lengthy periods of undisturbed maternal sleep and stillbirths
January 18, 2019 - New nuclear medicine method could improve detection of primary and metastatic melanoma
January 18, 2019 - Combination therapy shows high efficacy in treating people with leishmaniasis and HIV
January 18, 2019 - Health Tip: Don’t Ignore Changes in Skin Color
January 18, 2019 - Dietary Recommendations for Healthy Children
January 18, 2019 - Eliminating the latent reservoir of HIV
January 18, 2019 - Pain From The Government Shutdown Spreads. This Time It’s Food Stamps
January 18, 2019 - Newly discovered regulatory mechanism helps control fat metabolism
January 18, 2019 - New rapid blood tests could speed up TB diagnosis, save the NHS money
January 18, 2019 - Researchers develop intelligent system for ‘tuning’ powered prosthetic knees
January 18, 2019 - Monoclonal antibody pembrolizumab prolongs survival in patients with squamous cell carcinoma
January 18, 2019 - New research detects mosquito known to transmit malaria for the first time in Ethiopia
January 18, 2019 - New guidelines to make swallowing safer for people in Australian nursing homes
January 18, 2019 - Lumex Instruments’ RA-915AM monitor installed at Hg treatment plant in Almadén, Spain
January 18, 2019 - ACCC survey finds multiple threats to growth of cancer programs
January 18, 2019 - Meeting the challenge of engaging men in HIV prevention and treatment
January 18, 2019 - Furloughed Feds’ Health Coverage Intact, But Shutdown Still Complicates Things
January 18, 2019 - Experts discuss various aspects on health risks posed by fumigated containers
January 18, 2019 - Researchers use gene-editing tool CRISPR/Cas9 to limit impact of parasitic diseases
January 18, 2019 - Alpha neurofeedback training could be a means of enhancing learning success
January 18, 2019 - Innovative ‘light’ method demonstrates positive results in fight against malignant tumors
January 18, 2019 - The cytoskeleton of neurons found to play role in Alzheimer’s disease
January 18, 2019 - New resource-based approach to improve HIV care in low- and middle-income countries
January 18, 2019 - Bedfont appoints Dr Jafar Jafari as first member of the Gastrolyzer Medical Advisory Board
January 18, 2019 - New study shows link between secondhand smoke and cardiac arrhythmia
January 18, 2019 - DZIF scientists reveal problems with available diagnostics for Zika and chikungunya virus
January 18, 2019 - Breast cancers more likely to metastasize in young women within 10 years of giving birth
January 18, 2019 - Over 5.6 million Americans exposed to high nitrate levels in drinking water
January 18, 2019 - Blood vessels can now be created perfectly in a petri dish
January 18, 2019 - Study identifies prominent socioeconomic and racial disparities in health behavior in Indiana
January 18, 2019 - Young-Onset Type 2 Diabetes Tied to Increased Hospitalization Risk
January 18, 2019 - For-profit nursing schools associated with lower performance on nurse licensure test
January 18, 2019 - Considering the culture of consent in medicine
January 18, 2019 - Researchers identify comprehensive guidelines for managing severe atopic dermatitis
January 18, 2019 - Analyzing proteins in blister fluid may classify burn severity more accurately
January 18, 2019 - Study finds higher suicide rates among youth who were Medicaid enrollees
January 18, 2019 - Opioid drugs often overprescribed to children for pain relief, say CHOP surgeons
January 18, 2019 - New biodegradable wound dressing material accelerates healing
January 18, 2019 - Life in Space May Take Toll on Spinal Muscles
January 18, 2019 - Bulldogs’ screw tails linked to human genetic disease
January 18, 2019 - Immunotherapy target identified for pediatric cancers
January 18, 2019 - Financial stress may increase heart disease risk in African Americans
January 18, 2019 - Scientists solve another piece of Ebola virus puzzle
January 18, 2019 - New project finds how endocrine disruptors interfere with thyroid functions
January 18, 2019 - Research finds decline in ketone body utilization when coronary circulation is reduced
January 18, 2019 - Let’s map our DNA and save billions each year in health costs
Researchers examine Twitter conversations to understand thoughts concerning OpenAPS technology

Researchers examine Twitter conversations to understand thoughts concerning OpenAPS technology

image_pdfDownload PDFimage_print

The diabetes online community is leading grassroots efforts focused on accelerating the development, access and adoption of diabetes-related tools to manage the disease. Researchers at University of Utah Health examined the community’s online Twitter conversation to understand their thoughts concerning open source artificial pancreas (OpenAPS) technology. The results of this study are available online in the September 10 issue of the Journal of Diabetes Science and Technology.

“There is a large community that is actively exploring how they can manage their diabetes using off-label solutions,” says Michelle Litchman, Ph.D., FNP-BC, FAANP, an assistant professor in the College of Nursing at U of U Health and first author on the paper. “Health care providers, industry and the FDA need to understand the wants and needs of people with diabetes in order to better serve them. OpenAPS was created out of a need for better solutions.”

For the diabetes community, OpenAPS has been touted as an ideal technology for managing their illness. The off-label technology combines an off-the-shelf continuous glucose monitor (CGM) and insulin pump that interact to minimize glucose variability.

Before the Food and Drug Administration (FDA) approved the first technology to bridge these two devices in 2017, the community took matters into their own hands. They hacked into current CGMs and older insulin pumps and developed open source code to get the two devices to speak to one another, creating an OpenAPS. By crowdsourcing their code hacks, the community has improved this approach for blood sugar management.

Litchman and colleagues followed the #OpenAPS hashtag on Twitter to understand how the community is discussing this option.

After surveying more than 3,000 tweets using the #OpenAPS hashtag, generated by more than 300 participants from January 2016 to January 2018, Litchman found five overarching themes circulating around the community.

  1. With OpenAPS, self-reported A1C and glucose variability improved.
  2. OpenAPS reduced the daily distress and burden associated with diabetes.
  3. OpenAPS is perceived as safe.
  4. Interactions with health care providers concerning OpenAPS.
  5. How to adapt OpenAPS technology for individual user needs.

To date, more than 700 diabetes patients are using OpenAPS to manage their diabetes. One participant likened OpenAPS to having an autopilot on an aircraft. While the patient still has to manage their diabetes, OpenAPS has reduced some of the burden of care. Some tweets include:

“Finding OpenAPS literally changed my life. My numbers have been astounding. Last A1C was 5.4!”

“Boring glucose is beautiful [photo of CGM with a flat glucose pattern for the previous 3 hours]”

“For those times when I’ve lost [connection to] CGM readings… fallback [to standard] basal.”

“Citizen scientists from all over the world are coming together to enhance existing diabetes technology,” Litchman said. “They are not waiting for solutions. They are making solutions to help themselves manage their diabetes with more ease.”

Although the Twitter analysis exposes an active community that is exploring their options, there are limitations to the study, according to Litchman. It was not constructed using an experimental design or prospective cross-sectional data. In addition, the community participating in the conversation has a vested interest in OpenAPS. Social pressure may compel community participants to only post positive experiences with OpenAPS, reflecting a potential positive bias in the conversation.

“There are some unknowns about this type of technology,” Litchman said. “While there are obvious benefits to many people who are using OpenAPS, there are some areas that may be concerning.”

Patients do not need a prescription to create and use OpenAPS. They do not have a trained professional diabetes educator to help set up and train the user about the technology, a common practice when initially starting a new FDA-approved diabetes technology such as an insulin pump or CGM. Additionally, many of the hackable insulin pumps are no longer for sale through the device maker, opening a black market for used products.

This do-it-yourself (DIY) system is not regulated or approved by the FDA or device manufacturers of the altered insulin pump or CGM; however, the FDA is currently exploring OpenAPS technology as another option for diabetes management.

The pancreas produces the hormones (insulin and glucagon) that help regulate blood sugar. When this organ does not function properly, the body cannot control blood sugar effectively, leading to diabetes.

“The open artificial pancreas system is the next technological frontier of diabetes,” said Kelly L. Close, Founder, The DiaTribe Foundation,an organization that seeks to empower readers with useful, actionable information that helps make sense of diabetes. “It promises to transform all aspects of care and create opportunities that no other therapy can approach. I take nothing for granted, but if successful, it will normalize a condition that has bedeviled humanity for thousands of years.” Ms. Close was not involved in this study.

Source:

https://healthcare.utah.edu/publicaffairs/news/2018/09/twitter-openaps.php

About author

Related Articles